2023 Rare Disease Week - Deep Dive Policy Ask 1: Fda Task Force On Rare Disease Activities

2023 Rare Disease Week - Deep Dive Policy Ask 1: FDA Task Force on Rare Disease Activities

EveryLife Foundation for Rare Diseases

Rare Disease Week 2023: Deep Policy Dive Training Webinar

EveryLife Foundation for Rare Diseases

2023 Rare Disease Week - Deep Dive Policy Ask #2: Appropiations for Critical Rare Disease Programs

EveryLife Foundation for Rare Diseases

2023 Rare Disease Week – Policy Deep Dive: The BENEFIT Act

EveryLife Foundation for Rare Diseases

2023 Rare Disease Week - Welcome and Legislative Outlook

EveryLife Foundation for Rare Diseases

2022 Rare Disease Week - Policy Deep Dive: Speeding Therapy Access Today (STAT) Act

EveryLife Foundation for Rare Diseases

FDA Rare Disease Day 2023: “Intersections with Rare Diseases – A patient focused event”

U.S. Food and Drug Administration

2023 Rare Disease Week - Documentary Screening Panel Discussion

EveryLife Foundation for Rare Diseases

Rare Disease Week 2023

EveryLife Foundation for Rare Diseases

Advancing Rare Disease Therapies Through an FDA Rare Disease Innovation Hub

Reagan-Udall Foundation for the FDA

Rare Disease Through a Different Lens

U.S. Food and Drug Administration

Rare Disease Week 2023 (Promo Video)

EveryLife Foundation for Rare Diseases

Kerry Jo Lee's Work on Rare Diseases

U.S. Food and Drug Administration

A Look at Rare Disease Listening Sessions with NORD and the FDA

FDA Draft Guidance: Rare Disease Clinical Trials

FDA approves first ever medication for rare disorder

Rare Disease Patient Advocacy Day

U.S. Food and Drug Administration

FDA/Rare Diseases

2022 NHPDD Day 1, Session 2, Part 1